Third General Meeting of the European CMT Federation
01 July 2021
On Saturday, June 19, 2021, the third General Meeting of the European CMT Federation (ECMTF)was held on Zoom due to restrictions from Covid 19.
“It was a very nice and productive meeting, where many projects aimed at making the CMT known to a wider public, increasing collaboration between different countries and promoting scientific research were presented.
The website, fully updated, is an international reference point.
It was exciting to see how much the Federation has expanded. From 6 founding members we are now 11 members, with 5 other associate members and numerous partners, representing a large number of CMT patients. The meeting was also attended by representatives of a CMT group in Russia”.
The important partnership with EAMDA (http://www.eamda.eu) EUROPEAN ALLIANCE OF NEUROMUSCULAR DISORDES ASSOCIATIONS was announced during the meeting, non-profit organization based in Slovenia for the coordination of numerous patient associations from various Eastern European countries. This is their statement:
“We are pleased to announce the partnership between EAMDA and ECMTF (European Charcot Marie Tooth Federation), established through a signed Memorandum of Cooperation, for the benefit of the NMD community across Europe.
The European CMT Federation is a voluntary non-profit federation registered in Belgium, formed by national organizations supporting people living with Charcot Marie Tooth disease, a neuromuscular condition that affects 1 in 2500 people worldwide. ECMTF was founded in 2016 and has rapidly grown since then, extending its collaboration beyond the European border, towards USA, China or Israel.
Not only that EAMDA and ECMTF share common interests and goals, but we do consider that this cooperation will generate a lot of benefits for the people we represent, through the sharing of expertise and through common projects that will lead to a significant increase in the quality of life of people with neuromuscular disorders, CMT included.
This EAMDA-ECMTF partnership will also help us become a stronger and more influential voice for the NMD community, that will not only increase public awareness of these diseases, but also help us create a wider stakeholder involvement network.
“Together we are stronger” as our partners from The European Charcot Marie Tooth Federation (ECMTF) say!”