That is an original way invented by Meucci’s family to raise awareness about Charcot-Marie-Tooth 2A among an audience consisted by 400 employees of the multinational Kofax (Lexmark Group) .

Marco Meucci, father of Leonardo (an 8-year-old boy suffering from CMT2A ), helped by his friend and supported by his wife and their other two daughters, during an event organised in Las Vegas by the company he works for, realized a singing performance which first enjoyed and then touched the entire audience.

Watch the tape!