{"id":2002,"date":"2022-05-06T14:33:55","date_gmt":"2022-05-06T12:33:55","guid":{"rendered":"https:\/\/www.progettomitofusina2.com\/our-stories\/"},"modified":"2022-06-09T14:51:02","modified_gmt":"2022-06-09T12:51:02","slug":"our-stories","status":"publish","type":"page","link":"https:\/\/www.progettomitofusina2.com\/en\/our-stories\/","title":{"rendered":"Our stories"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-l2uegc67-392c5e41096a89c7d1337fb5cfe81023\">\n#top .av-special-heading.av-l2uegc67-392c5e41096a89c7d1337fb5cfe81023{\npadding-bottom:10px;\n}\nbody .av-special-heading.av-l2uegc67-392c5e41096a89c7d1337fb5cfe81023 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-l2uegc67-392c5e41096a89c7d1337fb5cfe81023 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-l2uegc67-392c5e41096a89c7d1337fb5cfe81023 av-special-heading-h2  avia-builder-el-0  el_before_av_textblock  avia-builder-el-first '><h2 class='av-special-heading-tag '  itemprop=\"headline\"  >Our stories<\/h2><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<section  class='av_textblock_section av-l2uegvgs-82d6538c4357b28964d43e135003d7da '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>In recent years we have collected more than one hundred testimonies, from over thirty countries around the world, of people living with <strong>CMT2A<\/strong> .<\/p>\n<p>They are stories of children and parents, adults and the elderly, entire families or single individuals; written by housewives, students, professionals, entrepreneurs, researchers, teachers and retirees &#8230; with a thousand faces of a reality made of courage and determination in facing life and illness.<\/p>\n<p>Many people have written us, but only few of them have chosen to publish their testimony.<\/p>\n<p>This is a space created to welcome your stories, a container where anyone can, if they want, share their own experience of life and illness to feel, and make others feel less &#8220;rare&#8221;.<\/p>\n<p>We created it because we think it is important to let others know, and not just those who like us live with this pathology, that we are here and that we want to find a cure, so that our optimism and our hope never stop being nourished by the solidarity of others.<\/p>\n<p>Your stories are preciuos, write us! <a href=\"mailto:info@progettomitofusina2.com\">info@progettomitofusina2.com<\/a><\/p>\n<\/div><\/section>\n<div id='av-masonry-1' class='av-masonry av-l2uf50is-1b687b04322e1e34ac61a0ac04ba3dd3 noHover av-flex-size av-1px-gap av-hover-overlay-active av-masonry-animation-active av-masonry-col-flexible av-caption-always av-caption-style- av-masonry-entries ' data-post_id=\"2002\"><div class=\"av-masonry-container isotope av-js-disabled\"><div class='av-masonry-entry isotope-item av-masonry-item-no-image all_sort our-stories_sort '><\/div><a href=\"https:\/\/www.progettomitofusina2.com\/en\/giovi-s-story\/\"  id='av-masonry-1-item-2004' data-av-masonry-item='2004' class='av-masonry-entry isotope-item post-2004 post type-post status-publish format-standard has-post-thumbnail hentry category-our-stories all_sort our-stories_sort  av-masonry-item-with-image' title=\"800&#215;800-LeNostreStorie-Giovi\"   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='av-inner-masonry-sizer'><\/div><figure class='av-inner-masonry main_color'><div class=\"av-masonry-outerimage-container\"><div class='av-masonry-image-container'  ><img decoding=\"async\" width=\"800\" height=\"430\" fetchpriority=\"high\" class=\"wp-image-1553 avia-img-lazy-loading-not-1553\"  src=\"https:\/\/www.progettomitofusina2.com\/wp-content\/uploads\/2022\/04\/800x800-LeNostreStorie-Giovi-800x430.jpg\" title=\"800&#215;800-LeNostreStorie-Giovi\" alt=\"\" \/><\/div><\/div><figcaption class='av-inner-masonry-content site-background'><div class='av-inner-masonry-content-pos'><div class='av-inner-masonry-content-pos-content'><div class='avia-arrow'><\/div><h3 class='av-masonry-entry-title entry-title '  itemprop=\"headline\" >Giovi&#8217;s story<\/h3><div class='av-masonry-entry-content entry-content'  itemprop=\"text\" >Hi, my name is Giovi. I am 15 and I live in Turin.\u00a0<br \/>\n<br \/>\nWhen I was born, my parents and 3-year-old brother thought I was a cute little baby \u2013 blonde, healthy and lively, with big green eyes eager to know everything about the world...<\/div><span class='av-masonry-date meta-color updated'>6 May 2022<\/span><span class=\"av-masonry-text-sep text-sep-author\">\/<\/span><span class='av-masonry-author meta-color author'><span class='fn'>by mood<\/span><\/span><\/div><\/div><\/figcaption><\/figure><\/a><!--end av-masonry entry--><a href=\"https:\/\/www.progettomitofusina2.com\/en\/a-familys-tale\/\"  id='av-masonry-1-item-2015' data-av-masonry-item='2015' class='av-masonry-entry isotope-item post-2015 post type-post status-publish format-standard has-post-thumbnail hentry category-our-stories all_sort our-stories_sort  av-masonry-item-with-image' title=\"800&#215;800-LeNostreStorie-famiglia\"   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='av-inner-masonry-sizer'><\/div><figure class='av-inner-masonry main_color'><div class=\"av-masonry-outerimage-container\"><div class='av-masonry-image-container'  ><img decoding=\"async\" width=\"800\" height=\"430\" fetchpriority=\"high\" class=\"wp-image-1556 avia-img-lazy-loading-not-1556\"  src=\"https:\/\/www.progettomitofusina2.com\/wp-content\/uploads\/2022\/04\/800x800-LeNostreStorie-famiglia-1-800x430.jpg\" title=\"800&#215;800-LeNostreStorie-famiglia\" alt=\"\" \/><\/div><\/div><figcaption class='av-inner-masonry-content site-background'><div class='av-inner-masonry-content-pos'><div class='av-inner-masonry-content-pos-content'><div class='avia-arrow'><\/div><h3 class='av-masonry-entry-title entry-title '  itemprop=\"headline\" >A family\u2019s tale<\/h3><div class='av-masonry-entry-content entry-content'  itemprop=\"text\" >Hello everyone. My name is Annamaria and I live in Rignano sull'Arno (near Florence).<br \/>\n<br \/>\nIt all began back in May 1996.<br \/>\nMy son Riccardo (23 months old at the time) fell, but as he stood up again he started limping...<\/div><span class='av-masonry-date meta-color updated'>6 May 2022<\/span><span class=\"av-masonry-text-sep text-sep-author\">\/<\/span><span class='av-masonry-author meta-color author'><span class='fn'>by mood<\/span><\/span><\/div><\/div><\/figcaption><\/figure><\/a><!--end av-masonry entry--><a href=\"https:\/\/www.progettomitofusina2.com\/en\/lindas-story\/\"  id='av-masonry-1-item-2020' data-av-masonry-item='2020' class='av-masonry-entry isotope-item post-2020 post type-post status-publish format-standard has-post-thumbnail hentry category-our-stories all_sort our-stories_sort  av-masonry-item-with-image' title=\"800&#215;800-LeNostreStorie-Linda\"   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='av-inner-masonry-sizer'><\/div><figure class='av-inner-masonry main_color'><div class=\"av-masonry-outerimage-container\"><div class='av-masonry-image-container'  ><img decoding=\"async\" width=\"800\" height=\"430\" fetchpriority=\"high\" class=\"wp-image-1557 avia-img-lazy-loading-not-1557\"  src=\"https:\/\/www.progettomitofusina2.com\/wp-content\/uploads\/2022\/04\/800x800-LeNostreStorie-Linda-800x430.jpg\" title=\"800&#215;800-LeNostreStorie-Linda\" alt=\"\" \/><\/div><\/div><figcaption class='av-inner-masonry-content site-background'><div class='av-inner-masonry-content-pos'><div class='av-inner-masonry-content-pos-content'><div class='avia-arrow'><\/div><h3 class='av-masonry-entry-title entry-title '  itemprop=\"headline\" >Linda&#8217;s story<\/h3><div class='av-masonry-entry-content entry-content'  itemprop=\"text\" >Hello, I'm Linda Craab! <br \/>\n<br \/>\nI\u2019ve lived with Charcot-Marie-Tooth disease for 70 years and I\u2019ve got a lot to say.<\/div><span class='av-masonry-date meta-color updated'>6 May 2022<\/span><span class=\"av-masonry-text-sep text-sep-author\">\/<\/span><span class='av-masonry-author meta-color author'><span class='fn'>by mood<\/span><\/span><\/div><\/div><\/figcaption><\/figure><\/a><!--end av-masonry entry--><a href=\"https:\/\/www.progettomitofusina2.com\/en\/the-story-of-marie-helene-from-france\/\"  id='av-masonry-1-item-2024' data-av-masonry-item='2024' class='av-masonry-entry isotope-item post-2024 post type-post status-publish format-standard has-post-thumbnail hentry category-our-stories all_sort our-stories_sort  av-masonry-item-with-image' title=\"800&#215;800-LeNostreStorie-Marie\"   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='av-inner-masonry-sizer'><\/div><figure class='av-inner-masonry main_color'><div class=\"av-masonry-outerimage-container\"><div class='av-masonry-image-container'  ><img decoding=\"async\" width=\"800\" height=\"430\" fetchpriority=\"high\" class=\"wp-image-1559 avia-img-lazy-loading-not-1559\"  src=\"https:\/\/www.progettomitofusina2.com\/wp-content\/uploads\/2022\/04\/800x800-LeNostreStorie-Marie-800x430.jpg\" title=\"800&#215;800-LeNostreStorie-Marie\" alt=\"\" \/><\/div><\/div><figcaption class='av-inner-masonry-content site-background'><div class='av-inner-masonry-content-pos'><div class='av-inner-masonry-content-pos-content'><div class='avia-arrow'><\/div><h3 class='av-masonry-entry-title entry-title '  itemprop=\"headline\" >The story of Marie-H\u00e9l\u00e8ne (from France)<\/h3><div class='av-masonry-entry-content entry-content'  itemprop=\"text\" >My name is Marie -H\u00e9l\u00e8ne, I 'm 27 and I live near Strasbourg.<br \/>\n<br \/>\nAround the age of two, my parents found a problem with my feet.When my mom put me shoes on, I was not able to raise them and run like other kids of my age did...<\/div><span class='av-masonry-date meta-color updated'>6 May 2022<\/span><span class=\"av-masonry-text-sep text-sep-author\">\/<\/span><span class='av-masonry-author meta-color author'><span class='fn'>by mood<\/span><\/span><\/div><\/div><\/figcaption><\/figure><\/a><!--end av-masonry entry--><a href=\"https:\/\/www.progettomitofusina2.com\/en\/the-story-of-nicolas-from-france\/\"  id='av-masonry-1-item-2029' data-av-masonry-item='2029' class='av-masonry-entry isotope-item post-2029 post type-post status-publish format-standard has-post-thumbnail hentry category-our-stories all_sort our-stories_sort  av-masonry-item-with-image' title=\"800&#215;800-LeNostreStorie-nicolas\"   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='av-inner-masonry-sizer'><\/div><figure class='av-inner-masonry main_color'><div class=\"av-masonry-outerimage-container\"><div class='av-masonry-image-container'  ><img decoding=\"async\" width=\"800\" height=\"430\" fetchpriority=\"high\" class=\"wp-image-1561 avia-img-lazy-loading-not-1561\"  src=\"https:\/\/www.progettomitofusina2.com\/wp-content\/uploads\/2022\/04\/800x800-LeNostreStorie-nicolas-800x430.jpg\" title=\"800&#215;800-LeNostreStorie-nicolas\" alt=\"\" \/><\/div><\/div><figcaption class='av-inner-masonry-content site-background'><div class='av-inner-masonry-content-pos'><div class='av-inner-masonry-content-pos-content'><div class='avia-arrow'><\/div><h3 class='av-masonry-entry-title entry-title '  itemprop=\"headline\" >The story of Nicolas (from France)<\/h3><div class='av-masonry-entry-content entry-content'  itemprop=\"text\" >My name is Nicolas , I am 21 and I have learned I have CMT2A since I was 16.<br \/>\n<br \/>\nI was born three weeks in advance. I was a baby without problems , qualified a bit lazy until the time of walking. I did it in a weird way, with big problems of balance, falling a lot...<\/div><span class='av-masonry-date meta-color updated'>6 May 2022<\/span><span class=\"av-masonry-text-sep text-sep-author\">\/<\/span><span class='av-masonry-author meta-color author'><span class='fn'>by mood<\/span><\/span><\/div><\/div><\/figcaption><\/figure><\/a><!--end av-masonry entry--><a href=\"https:\/\/www.progettomitofusina2.com\/en\/the-story-of-yohan-from-france\/\"  id='av-masonry-1-item-2031' data-av-masonry-item='2031' class='av-masonry-entry isotope-item post-2031 post type-post status-publish format-standard has-post-thumbnail hentry category-our-stories all_sort our-stories_sort  av-masonry-item-with-image' title=\"800&#215;800-LeNostreStorie-yohan\"   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='av-inner-masonry-sizer'><\/div><figure class='av-inner-masonry main_color'><div class=\"av-masonry-outerimage-container\"><div class='av-masonry-image-container'  ><img decoding=\"async\" width=\"800\" height=\"430\" fetchpriority=\"high\" class=\"wp-image-1570 avia-img-lazy-loading-not-1570\"  src=\"https:\/\/www.progettomitofusina2.com\/wp-content\/uploads\/2022\/04\/800x800-LeNostreStorie-yohan-800x430.jpg\" title=\"800&#215;800-LeNostreStorie-yohan\" alt=\"\" \/><\/div><\/div><figcaption class='av-inner-masonry-content site-background'><div class='av-inner-masonry-content-pos'><div class='av-inner-masonry-content-pos-content'><div class='avia-arrow'><\/div><h3 class='av-masonry-entry-title entry-title '  itemprop=\"headline\" >The story of Yohan (from France)<\/h3><div class='av-masonry-entry-content entry-content'  itemprop=\"text\" >My name is Yohan, I was born in March 2000 and I suffer from CMT2A (HMSN2A caused by MFN2 gene mutation) diagnosed in April 2008.<br \/>\n<br \/>\nI started walking when I was 9 months, but at the age of 18 months I didn\u2019t want to walk anymore...<\/div><span class='av-masonry-date meta-color updated'>6 May 2022<\/span><span class=\"av-masonry-text-sep text-sep-author\">\/<\/span><span class='av-masonry-author meta-color author'><span class='fn'>by mood<\/span><\/span><\/div><\/div><\/figcaption><\/figure><\/a><!--end av-masonry entry--><a href=\"https:\/\/www.progettomitofusina2.com\/en\/nigels-story-uk\/\"  id='av-masonry-1-item-2033' data-av-masonry-item='2033' class='av-masonry-entry isotope-item post-2033 post type-post status-publish format-standard has-post-thumbnail hentry category-our-stories all_sort our-stories_sort  av-masonry-item-with-image' title=\"800&#215;800-LeNostreStorie-Nigel\"   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='av-inner-masonry-sizer'><\/div><figure class='av-inner-masonry main_color'><div class=\"av-masonry-outerimage-container\"><div class='av-masonry-image-container'  ><img decoding=\"async\" width=\"800\" height=\"430\" fetchpriority=\"high\" class=\"wp-image-1928 avia-img-lazy-loading-not-1928\"  src=\"https:\/\/www.progettomitofusina2.com\/wp-content\/uploads\/2022\/05\/800x800-LeNostreStorie-Nigel-800x430.jpg\" title=\"800&#215;800-LeNostreStorie-Nigel\" alt=\"\" \/><\/div><\/div><figcaption class='av-inner-masonry-content site-background'><div class='av-inner-masonry-content-pos'><div class='av-inner-masonry-content-pos-content'><div class='avia-arrow'><\/div><h3 class='av-masonry-entry-title entry-title '  itemprop=\"headline\" >Nigel&#8217;s story (UK)<\/h3><div class='av-masonry-entry-content entry-content'  itemprop=\"text\" >Hi, I am Nigel, 68, and I would like to tell you my story of CMT2A (so far).<br \/>\n<br \/>\nFrom about 10yrs old I was suppose clumsey but doctors thought this was a side effect of some tablets I was taking for a different problem...<\/div><span class='av-masonry-date meta-color updated'>6 May 2022<\/span><span class=\"av-masonry-text-sep text-sep-author\">\/<\/span><span class='av-masonry-author meta-color author'><span class='fn'>by mood<\/span><\/span><\/div><\/div><\/figcaption><\/figure><\/a><!--end av-masonry entry--><a href=\"https:\/\/www.progettomitofusina2.com\/en\/the-story-of-betty-and-her-child-from-china\/\"  id='av-masonry-1-item-2035' data-av-masonry-item='2035' class='av-masonry-entry isotope-item post-2035 post type-post status-publish format-standard has-post-thumbnail hentry category-our-stories all_sort our-stories_sort  av-masonry-item-with-image' title=\"800&#215;800-LeNostreStorie-Betty\"   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='av-inner-masonry-sizer'><\/div><figure class='av-inner-masonry main_color'><div class=\"av-masonry-outerimage-container\"><div class='av-masonry-image-container'  ><img decoding=\"async\" width=\"800\" height=\"430\" fetchpriority=\"high\" class=\"wp-image-1930 avia-img-lazy-loading-not-1930\"  src=\"https:\/\/www.progettomitofusina2.com\/wp-content\/uploads\/2022\/05\/800x800-LeNostreStorie-Betty-800x430.jpg\" title=\"800&#215;800-LeNostreStorie-Betty\" alt=\"\" \/><\/div><\/div><figcaption class='av-inner-masonry-content site-background'><div class='av-inner-masonry-content-pos'><div class='av-inner-masonry-content-pos-content'><div class='avia-arrow'><\/div><h3 class='av-masonry-entry-title entry-title '  itemprop=\"headline\" >The story of Betty and her child from China<\/h3><div class='av-masonry-entry-content entry-content'  itemprop=\"text\" >This is the story of Betty, a chinese mother able to turn her suffering for her and her child disease into something precious for a lot of people. It has been translated by an article published on the Shenzhen Evening News...<\/div><span class='av-masonry-date meta-color updated'>6 May 2022<\/span><span class=\"av-masonry-text-sep text-sep-author\">\/<\/span><span class='av-masonry-author meta-color author'><span class='fn'>by mood<\/span><\/span><\/div><\/div><\/figcaption><\/figure><\/a><!--end av-masonry entry--><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2002","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.progettomitofusina2.com\/en\/wp-json\/wp\/v2\/pages\/2002","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.progettomitofusina2.com\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.progettomitofusina2.com\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.progettomitofusina2.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.progettomitofusina2.com\/en\/wp-json\/wp\/v2\/comments?post=2002"}],"version-history":[{"count":3,"href":"https:\/\/www.progettomitofusina2.com\/en\/wp-json\/wp\/v2\/pages\/2002\/revisions"}],"predecessor-version":[{"id":2012,"href":"https:\/\/www.progettomitofusina2.com\/en\/wp-json\/wp\/v2\/pages\/2002\/revisions\/2012"}],"wp:attachment":[{"href":"https:\/\/www.progettomitofusina2.com\/en\/wp-json\/wp\/v2\/media?parent=2002"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}